Okay, so any of you who follow my blog (or who know me personally – who am I kidding you’re all one in the same!) know that I have had some pretty intense medical issues throughout 2009.
Here’s a Reader’s Digest version of the past 6 months:
I had severe headaches, neck/shoulder pain and double vision. My family practice doctor (who is also a family friend) freaked out and sent me to a neurologist. Apparently you don’t play around with headaches. I visited the neurologist, who ordered a CT of my brain and started me on Topamax for the migraines he thought I was having. My jaws were also very sore (from loads of TMJ problems), so I also consulted my dentist who recommended a specialist in another city. My family practice doctor also recommended that I see my optometrist to see if anything had changed with my eyes to cause the headaches and double vision.
I went to the optometrist. My vision was slightly different, though not significantly. However, because the double vision had increased since my last visit, my optometrist adjusted the prism prescription in my lenses. They didn’t really help, and I still had the double vision.
I visited the TMJ guy, who said I had Occipital Atlas Dysfunction (coupled with my TMJ), which was causing the neck pain (and perhaps even the headaches and double vision). He also knew he could fix the TMJ, so I was fitted with pivot splints (which have been working…thankfully).
Meanwhile back at the ranch, my neurologist got the results to my CT scan and said that I was fine. That’s nice. But I wasn’t fine. I was still in pain. I was having frequent headaches and my neck and shoulders were killing me. So the neurologist ordered another CT (this time with contrast). Whatever…that one didn’t find anything either. So he ordered an MRI of my brain. Still nothing. So he ordered an MRI with some sort of dye. Still nothing. He said he was convinced it was migraines. I was not convinced. I wasn’t light sensitive, and noise didn’t bother me. I just hurt!
Throughout all of this I had been doing physical therapy. The physical therapists were funny, but not too helpful.
4-5 months after my first visit with the neurologist, I finally convinced him that I was having neck/shoulder pain that wasn’t associated with my brain. I begged for him to check it out (thinking he’d order an MRI). He ordered a CT of my cervical spine, which showed bone spurs. He sent me to a pain management specialist.
I visited the pain management specialist. He was very strange. That’s another blog entry entirely. He asked why the neurologist only ordered a CT when an MRI would have shown the discs more clearly. Like I’d know the answer to that! Anyway, he ordered an MRI of my cervical spine, which showed herniated discs…no wonder my neck and shoulders have been hurting so badly.
The pain management guy said I should try an epidural. I did. I did NOT enjoy it, nor did I enjoy the fact that four nurses were holding me down while he inserted the big, scary needle into my neck. I also rather hated the fact that he said, “Oh, shit” at one point during the procedure. Like I wasn’t freaked out enough by the fact that four people were holding me down while a very strange doctor inserted a needle into my neck!
I was nearly guaranteed that the epidural would “work.” It did not. The only thing it succeeded in doing was making my right hand/arm numb and tingly.
Right. So, the pain management specialist referred me to a neurosurgeon, because apparently there’s nothing else they can do for the neck as far as pain management is concerned. The minimally invasive surgical procedures they can do for the lower back haven’t been approved yet for the neck. Go figure.
So, my appointment with the neurosurgeon isn’t until December 17th. I’ve tried to get in sooner, but that is the first available appointment until March at this point.
Nevertheless, today I went back to my TMJ specialist for my monthly appointment. Usually the appointment entails getting my pivot splints adjusted, letting the doctor feel around on the joints, opening my mouth repeatedly and this really cool procedure that makes my headaches disappear immediately. He pulls on my head to stretch my neck. It feels a bit awkward, but makes the pain go away after a couple rounds. Today, however, he wouldn’t do the stretch, because he was afraid to do anything to my neck since he knew about the herniated discs. Damn. So now I have neck/shoulder pain and a nagging headache.
I’m taking muscle relaxers, but I can’t work and take them, so I endure the pain all day until I get home. It sucks, but it is my routine.
Hopefully I can get some relief at some point. I’m considering seeing a chiropractor, but I’m not sure that’s what I need. Ugh!